This news has been received from: FOX News

All trademarks, copyrights, videos, photos and logos are owned by respective news sources. News stories, videos and live streams are from trusted sources.

mail: [NewsMag]

Two years before his death, Bob Saget quietly offered his support to a family whose 9-year-old daughter is suffering from Scleroderma, the same disease that took the life of his sister in 1994. 

Saget was a tireless advocate for those battling the disease, constantly doing charitable events and working on the Board of the Scleroderma Research Foundation.

On multiple occasions, he noted how committed he was to finding a cure after he was personally affected by the disease. The comedian’s sister, Gay, died at age 47 of the disease years ago. 

According to TMZ, part of Bob’s work with combating the disease included reaching out to a girl named Sophie Anne, who was diagnosed with the disease when she was 7. Saget reportedly sent the little girl personalized videos offering her comfort, support and hope that a cure could be forthcoming. 

The outlet notes that Saget understood better than anyone that Schleroderma affects not just the patient, but the whole family. As a result, he made himself available to the girl’s sister and parents as well. He spent more than 30 minutes on the phone with Sophie’s sister so that she could write a paper on him titled "Bob Saget: My Everyday Hero."

BEFORE HIS DEATH, BOB SAGET DISCUSSED FUTURE PLANS, EXCITEMENT OVER NEW STAND-UP SPECIAL

Bob Saget died unexpectedly at age 65.  (Emma McIntyre/Getty Images)

Months ago, when Saget was performing in North Carolina, he comped Sophie’s parents, Martha and Jeff, tickets to one of his shows. In addition to paying for their tickets and meals, he invited them backstage after the performance. 

The "Full House" actor clearly kept in touch. In early December, weeks before his unexpected death, he shared a video on his Instagram that was a repost from the Scleroderma Research Foundation’s page that starred Sophie discussing the disease. 

"Sophie Anne is one of the reasons I will forever be on the Board of Directors and fight to find the cure to the disease Scleroderma that took my sister‘s life," Saget captioned the post before adding the original text from the foundation. 

BOB SAGET SPOKE ABOUT COVID BOUT BEFORE DEATH: 'IT DOES NOT FEEL GOOD'

"Sophie Anne and her family are filled with hope, and they inspire us every single day to stay laser-focused on finding a cure. With your support, together we can make a meaningful difference for Sophie Anne, her family, and all those who are touched by this disease," the post continues. 

Actor/comedian Bob Saget was a tireless advocate for Scleroderma before his death. (Michael Tran/FilmMagic)

Saget served on the board of the San Francisco-based organization for 25 years. The foundation paid a tribute to the actor on its website: "It is with a very heavy heart that we mourn the loss of our dear friend and Board member, Bob Saget. Bob was a champion for scleroderma patients everywhere dating back to 1991 when he first became involved with the Scleroderma Research Foundation, even before his sister Gay lost her battle with the disease."  

Saget was involved with the foundation’s fundraising event called Cool Comedy-Hot Cuisine, according to its website. This was prior to his sister being diagnosed with the disease. 

CLICK HERE TO SIGN UP FOR OUR ENTERTAINMENT NEWSLETTER

Scleroderma means "hard skin." According to health experts, it is an autoimmune disease that causes the skin to become inflamed, which then sparks the body’s immune system to make too much collagen. Health experts told Fox News the disease varies in severity and rate of progression.   

Bob Saget helped a 9-year-old Scleroderma patient before his death.  (Paul Archuleta/FilmMagic)

CLICK HERE TO GET THE FOX NEWS APP

"Scleroderma (aka systemic sclerosis) is a chronic autoimmune condition characterized by progressive thickening, tightening, and hardening of the skin," Dr. Wendy Chi, a rheumatologist for Mount Sinai Health System in New York City, told Fox News in an email and added, "It typically starts on the hands and face, but can spread to involve extremities and trunk in certain patients." 

Fox News' Amy McGorry contributed to this report. 

Tyler McCarthy covers entertainment at Foxnews.com.

News Source: FOX News

Tags: security innovation computers video games military tech royals security innovation computers video games military tech diagnosed with the disease on the board involved before his death the foundation health experts and her family the foundation told fox news click here according disease

Consumer Confidence Dragged Down As Bidenflation and Omicron Crush Hope

Next News:

Kennard scores 7 in final 9 seconds as Clippers stun Wizards

WASHINGTON (AP) — Luke Kennard scored seven points inside the final 9 seconds, including a go-ahead four-point play with 1.9 seconds remaining, and the Los Angeles Clippers overcame a 35-point first-half deficit to stun the Washington Wizards 116-115 on Tuesday night.

Kennard hit a 32-footer out of a timeout and then, after Washington committed a 5-second violation, sank another 3 running to his right while absorbing a foul from Bradley Beal. He finished with 25 points.

Amir Coffey scored a career-high 29 points for the depleted Clippers, who evened their record to 2-2 at the midpoint of a season-long eight game trip.

Terance Mann and Isaiah Hartenstein each had 16 points for Los Angeles, which scored 80 points after halftime to improve to 7-10 since losing seven-time All-Star guard Paul George to a right elbow injury last month.

Kyle Kuzma had 19 points and 12 rebounds, and Beal added 10 of his 23 points in the fourth quarter of Washington’s fourth consecutive defeat.

The Wizards opened the game on a 15-2 run and led by 35 in the second quarter before giving it all back after halftime to complete an eight-game homestand with a 3-5 record. LA outscored Washington 40-27 in the third quarter and 40-22 in the fourth.

Washington led by nine at the end of the first quarter and held the Clippers to 13 points on 5-of-20 shooting in the second.

Los Angeles gradually cut into the lead in the third, got it to single digits with a 15-1 run that stretched into the fourth, got to within two inside the final three minutes, and then closed the game on an 11-2 run.

The Wizards contributed to the cause with seven fourth-quarter turnovers, including five inside the final six minutes.

On the last, Washington failed to inbound the ball in time with 8.2 seconds to play, setting up Kennard’s heroics.

TIP-INS

Clippers: Their previous largest deficit of the season was 28 points in a 113-89 loss at New Orleans on Jan. 13. … Improved to 2-6 in the first leg of back-to-back games. … F Marcus Morris sat out due to personal reasons. … Kawhi Leonard has not played all season while recovering from a torn ACL.

Wizards: Held the Clippers to 36 first-half points, an opponent’s season low. … Kuzma’s double-double was his 19th of the season and eighth in January.

UP NEXT

Clippers: Continue their trip at Orlando on Wednesday night.

Wizards: Begin a three-game trip at Memphis on Saturday night.

___

More AP NBA: https://apnews.com/hub/nba and https://twitter.com/AP_Sports

Copyright © 2022 The Associated Press. All rights reserved. This material may not be published, broadcast, written or redistributed.

Other News

  • Vikings Make Final Decision, Hire Next GM: Report
  • Despite previous COVID infection, Virginia hospital denies terminally ill patient kidney transplant until hes vaccinated
  • Cristiano Ronaldo’s Wag Georgina Rodriguez drops action-packed final trailer for Netflix doc ahead of release TOMORROW
  • Carters dream, almost reached: Guinea worm cases drop to 14
  • Tech, gambling and alcohol helped the NFL earn almost $2 billion in sponsorships this season
  • Urgent warning as 300,000 Brits living with stealth disease that could kill within 5 years
  • Kennard Scores 7 In Final 9 Seconds As Clippers Stun Wizards
  • Chinese Propaganda Outlet Blasts Bob Costas for Desecrating Olympic Spirit by Criticizing China
  • Curt Schilling Not Elected to Baseball Hall of Fame in Final Year on the Ballot
  • Roger Clemens releases statement on Hall of Fame snub in final year on ballot
  • Barry Bonds Denied Entry To Baseball Hall Of Fame In Final Year On Ballot
  • Ravens coach John Harbaugh, entering final year of deal, expected to sign contract extension
  • Pittsburgh Civil Rights Icon Alma Speed Fox Dies
  • Lawmaker’s staff allegedly ran errands for wife and helped with son’s job search
  • During Omicron, disease severity appears to be lower than during other periods of high transmission, according to CDC study
  • Woman who helped monkeys in Pennsylvania crash experiencing health issues: report
  • Why Bob Dylan, Bruce Springsteen and Stevie Nicks have sold their music catalogs
  • Georgia bill would ban abortion pills by mail, require exams
  • This New Tool Uses Your Blood to Calculate Long COVID Risk